Today, I met with a tremendous number of patient safety advocates at IHI. My work with Cautious Patient Foundation centers around patient safety. But I have, up until now, not met very many Patient Safety advocates in person.
That all changed today. I was introduced to forty of them at once.
Frankly, it was heart-wrenching. Credentials for patient advocates in the patient safety community are not M.D., or R.N. or PhD.
Credentials read: lost son to MRSA infection, infected with flesh-eating bacteria due to unsafe surgical conditions, child brain-damaged from new-born jaundice, spouse lost to multiple medical errors.
These people have paid dearly for their credentials. It was moving to hear the introductions, and you can share in the experience. Paul Levy (yes that Paul Levy) diligently tweeted about many of the introductions. That is not the only record kept of this morning. Regina Holliday (yes that Regina Holliday) was doing one of her paintings for the morning. I hope to get some more info on this soon!!
Overall it was a humbling experience. I have been with e-patients before, but often, e-patient stories are uplifting, they have both tragedy and triumph. With these e-patients, the triumph is often that they can talk about their loved one coherently without weeping. Almost everyone, (including me) in the room was probably dealing with mild to severe PTSD in one way or another. Most of us were high functioning, but many of us were still very very angry. And when you heard the details, it was hard to say that bitterness or anger were not entirely appropriate. These people are justifiably furious.
I already have 10 new ideas for good software projects.
OSCON has just published my health of the source talk from OSCON 2010! My slides got a little mixed up, so my delivery is a little scattered, but I hit all of the points I wanted to, just in the wrong order…
He discusses just how prevalent the notions of Open Source and open data standards are already in the coming ARRA-based Health Informatics world. He even hones in on critical problems like the proprietary CPT codebase.
He also gives compelling clues about how critical Red Hat servers are in his environment, and how Linux and other platform level Open Source has been well-adopted.
Tell folks to come to the “interoperability showcase” in exhibit hall C, in particular to the NHIN and Connect area, where we are presenting on Connect with 60 other partners (most non-Fed) who have piloted or set up exhanges with NHIN standards, most of them with Connect, many of them by integrating with other Open Source med software.
You should stop by booth 233 at the Interoperability Showcase and see MOSS demonstrate OpenPIXPDQ, OpenXDS and OpenATNA. MOSS also has a regular vendor booth numbered 7470. DSS is at booth 2521. PatientOS is at booth 4124 with orange shirts and lunch bags…
Medsphere and ClearHealth abstain this year (I think). I know the Mirth guys are around too.. If you are there and want to get ahold of them, send me a mail and I will do my best to get an introduction…
First, I am renaming the yearly Houston Open Source Conference from fosshealth to OSHealthCon, which just stands for Open Source Health Software Conference. Why the name change? Well, it is caused by the need for me to distance myself from the term “free”. I know what “free” means when you are talking about software, but again and again, the term is abused by people with a proprietary agenda.
People would talk about the differences between “free software” vs “commercial software” implicitly insulting any professional who wants to use freedom-respecting licenses.So I am throwing in the towel. I am not going to fight this battle any more. At some point, I have to decide if I am going to advocate for freedom, or for one particular way of talking about freedom.
This is our first stab at videoing our own conference, and the results are just as amateurish as you might expect. Still, if you can tolerate the sound, there is a tremendous amount of insight available there.
I will be posting new videos there as I sort out how to make blip.tv transcoding work on GNU/Linux.